Family calls attention to rare pediatric disorders
“If a parent comes to you and describes a sudden and acute change in their child, that is a medical
4 min read
Jacalyn Lee and Rio Escueta of Dobbs Ferry are doing all they can to find lasting relief for children like their 5-year-old daughter, Isla, who has an ultra-rare condition, one of two kinds of DEAF1-associated neurodevelopmental disorders (DANDs).
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